Create your Discussion Guide

If you believe you may be living with hidradenitis suppurativa (HS), speaking with your dermatologist (who specialized in skin health) to get more information about your condition is an important first step in managing your condition. Though you may have a regular medical provider, because HS is not a widely known disease, it is recommended that you consult a dermatologist with any questions you have, as they may be more familiar with HS than your general practitioner.

To make a discussion with your dermatologist as informative and effective as possible, answer as many of the following questions as you can, then create a custom report to share with your doctor. Your responses will not be recorded or saved by this website and are for your records only.

 

Learn to speak confidently about HS

  • Developed by Prof. Dr Gregor Jemec.1
  • Understand your HS symptoms.
  • Learn to speak confidentlyto your dermatologist.

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1 Select the areas where tender bumps and boils occur:
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REMEMBER: this is only a guide for you to make an active conversation with your dermatologist. You should feel comfortable asking your dermatologist any questions you may have and providing as much information as possible to help ensure an accurate diagnosis.

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2 In these areas, have you experienced bumps or boils during the last six months?
3 Have you experienced three or more episodes during this time?
4 Have your symptoms been constant or have they gone away and returned?
5 If your symptoms have been recurrent, how long do the periods between flares typically last?
6 If your bumps or boils heal, is there scarring?

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Using the silhouettes, please select any areas where you have noticed any scarring.

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REMEMBER: this is only a guide for you to make an active conversation with your dermatologist. You should feel comfortable asking your dermatologist any questions you may have and providing as much information as possible to help ensure an accurate diagnosis.

Continue

7 How old are you?
8 Are you male or female?
9 When did you first notice any symptoms?
10 Over time, have the symptoms changed?
11 Do you know anyone in your family that has lived with HS?
12 Have you spoken with a dermatologist or other medical professional about HS?

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REFERENCES:

  1. Esmann S, Dufour DN, Jemec GBE. Questionnaire-based diagnosis of hidradenitis suppurativa: specificity, sensitivity and positive predictive value of specific diagnostic questions. Br J Dermatol 2010;163:102–106.